Miami Children's Hospital

Today, Jesse will receive tubes in his ears to help drain the accumulated fluid. This is a same day surgery.

When we arrived at Miami Children's Hospital we were told our ENT Dr. was delayed with an emergency surgery so we hung out in the resource Ctr. First time Jesse has been on a ride on toy. I will be buying him one soon. Even though he was not pushing with his feet. I am sure with the help of his awesome PT Janice it will not take him long to figure it out...

Finally we were taken to Pre-OP. So, I must get this off my chest.. When it was time to take Jesse back, one of the nurses told me that she was getting his medicine. It was a liquid in a syringe, he didn't seem to like it and spit some out (good boy). She went back to get more and as she started to give him more I asked her what she was giving him and she said (i believe) Valium.. to help sedate and relax him. I was livid.. Why don't they ask parent's if we want to dope up our kids unnecessarily!! She said some kids have a hard time transitioning to the nurse and going back to the operating room. Ok, I get this but my kid would be fine, this I am 100% positive of. I think it is just easier for nurses and Dr's to dope up kids to make their job's easier.. I should have been asked what my child was like and if he is likely to have a hard time? As soon as she gave him the med's his eyes glazed over like he had just smoked weed...ughh

Before medication, great pointer finger Jesse! (he just learned)

Before Medication..

After....

Off he goes...

Good Luck Jesse!

Once he was taken back to the operating room, things went very quickly. The surgery itself is only about 10 min. It was about an hour from when they took him till we saw him in the recovery room.

On our way back HOME! :)

The day before: Ft. Lauderdale Beach

Jesse is scheduled on Monday October 22 to have tubes put in his ears to help drain fluid. His ENT Dr. told us with the fluid he is most likely to be hearing everything as if underwater. Nir and his Dad, visiting from Israel took Josh, Jake and Jonah over to Ft. Lauderdale for the weekend. Claudia and I caught up on some work around the house like finally planting our herb garden:







We joined the boys on Sunday at the Ritz Carlton Ft. Lauderdale Beach, what a beautiful view:

We had a great time at the pool..

JAKE AND JESSE :)

JOSH AND JESSE :)

MY BOYS! 

Meeting Bentyn and his family...

 Someone emailed me the info that a local boy, from Cape Coral with DS was chosen (200 chosen from 2,000)  to be on the big screen in times square. The big screen played a video of children and adults to promote the month of October as Down Syndrome Awareness Month. You can see the video here:  It is amazing!! What beautiful Children and Adults!!!

I contacted his family via FB, and we immediately hit it off.. It is so nice to be able to talk to another Mom about Dr's appointments, etc.. and bounce idea's off each other. I called Barbie as soon as I left Jesse's last ENT (ear,nose,throat) appt. Dr. Orjuela recommended Jesse have tubes put in his ears.. Bentyn also is seeing a ENT and was recommended the same, as well as having a sleep study done..

Good Luck Bentyn.. xoxo

It was amazing Jesse usually pulls everyone's hair, (Jonah's long beautiful curly hair his favorite). With Bentyn he just stroked his hair without pulling it. He knows Bentyn "BIG'' is his Bud, good job Jesse..

Skateboard Sunday...

Nir on his Electric Skateboard... Do I have 4 or 5 boys???

Life is Beautiful...

We are so blessed to live in such a beautiful place, Moorings Beach is in walking distance of our house.  We try to take advantage of this as much as we can. (def. not as much as we should)


Trip to beach a few weeks ago:

If you look in the distance you can see Naples Pier.....

Most recent trip: