Meeting Bentyn and his family...

 Someone emailed me the info that a local boy, from Cape Coral with DS was chosen (200 chosen from 2,000)  to be on the big screen in times square. The big screen played a video of children and adults to promote the month of October as Down Syndrome Awareness Month. You can see the video here:  It is amazing!! What beautiful Children and Adults!!!

I contacted his family via FB, and we immediately hit it off.. It is so nice to be able to talk to another Mom about Dr's appointments, etc.. and bounce idea's off each other. I called Barbie as soon as I left Jesse's last ENT (ear,nose,throat) appt. Dr. Orjuela recommended Jesse have tubes put in his ears.. Bentyn also is seeing a ENT and was recommended the same, as well as having a sleep study done..

Good Luck Bentyn.. xoxo

It was amazing Jesse usually pulls everyone's hair, (Jonah's long beautiful curly hair his favorite). With Bentyn he just stroked his hair without pulling it. He knows Bentyn "BIG'' is his Bud, good job Jesse..

Skateboard Sunday...

Nir on his Electric Skateboard... Do I have 4 or 5 boys???

Life is Beautiful...

We are so blessed to live in such a beautiful place, Moorings Beach is in walking distance of our house.  We try to take advantage of this as much as we can. (def. not as much as we should)


Trip to beach a few weeks ago:

If you look in the distance you can see Naples Pier.....

Most recent trip:

Life after surgery...

We went to the Pediatrician today for a physical. This is a "typical" kids chart. At one point Jesse was not even on the chart. The lowest point was a few weeks before his OHS.  Today he weighed 9.6 kg which is  almost 21 1/2  lbs! woo hoo!! Right before surgery he weighed a little under 17 1/2 lbs. That is just about 4 lbs in 9 weeks... It has been amazing watching him blossom after surgery.

The bottom numbers on chart are his age in months.

He has become so fast at army crawling.

Able to hang around and play. Before surgery sitting/standing in this position would restrict the blood flow to his legs, causing his legs to turn purple.

Jesse is also learning alot more sign language. Here he is practicing how to sign "give me". You open your fingers from your thumb out straight... He also knows how to sign "please" which is rubbing your chest in a circle. So he can say "give me, please" :) Still important to know your manners while signing.

His core strength is improving each day. Jesse was unable to sit up with his legs straight out. He would sit with both his legs bent. "looking like a frog", like in this photo...

Jesse is holding his own cup, great fine motor skills. But, he still loves having some help by big brother Jake...

He is also pulling up on anything he can find:

Eight weeks post surgery and Jesse's scar is looking amazing!! While at Hippocrates Health Inst. in June we purchased a high frequency laser to help heal his scar.